Patient-focused research is dedicated to collecting information related to an individual's experience living with cutaneous lymphoma and/or its treatment. This research plays an important role in improving patient care and directing future medical research as the individual is the expert on its impact on their life day-to-day.
Research
Global Patient Survey
The Global Patient Survey seeks to help make the patient experience in lymphomas, as well as the impact of treatment and care, better understood, and help the Lymphoma Coalition and its global members bring the patient voice forward.
MAVORIC clinical trial: Health-Related Quality of Life in CTCL Abstract
In this research, study authors looked at baseline data collected from the MAVORIC clinical trial to understand and identify which aspects of the disease (MF/SS) impact patient health related quality of life (HRQL) the most.
The Global Research on the Impact of Dermatological Diseases (GRIDD) project aims to collect global data on the impact of dermatological conditions on patients’ lives. The collected data will help to inform areas of need for improved care, better treatment options, and more affordable medicine for dermatology patients globally. Â
