An innovative approach to collecting data that could show the impact of the patient’s experience was needed to drive change for patients living with dermatological diseases and conditions (including albinism and burns).  

Where/how do you begin to do this? To help answer this question, the Global Research on the Impact of Dermatological Diseases (GRIDD) project was launched along with the launch of the International Alliance of Dermatology Patient Organizations (IADPO, commonly referred to as Global Skin).

The data collected focused on the impacts of living with skin conditions. With this data, the patient experience can be brought to the clinical community and beyond to help move patient care forward by stimulating research, optimizing healthcare spending, and influencing future policies for improved patient outcomes.

Responses from over 2,000 patients across 61 countries and over 90 dermatologic conditions were gathered.  

This data will enhance the credibility of the dermatology community’s advocacy efforts to promote patient-centric approaches in decision-making circles and eventually improve the lives of individuals living with the stigma, mental health impacts, and burdensome aspects of skin conditions worldwide.

Sharing patient experiences through the study will help to show clinicians, researchers, and policymakers the true impact of living with dermatological conditions. The accumulated data supports calls for access to care, improved treatment options, and increased affordability of medicines for dermatology patients on a global scale. Your input makes a difference in the lives of people with skin conditions worldwide.

The Cutaneous Lymphoma Foundation has the honor and privilege of being part of the initial inception of this project. We are excited about where the data will lead us in the future to serve our patient community across the globe. Learn more about the GRIDD project on the Global Skin website: https://globalskin.org/research