The Cutaneous Lymphoma Foundation partners with the following organizations to enhance its work of making sure that each person with cutaneous lymphoma gets the best care possible.
About Us
Haystack Project
Haystack Project is a non-profit dedicated to ensuring patients with rare and ultra-rare diseases have access to the treatments they need. It brings together patient organizations to learn from each other and advocate for better care.
The International Coalition for Cutaneous Lymphoma (ICCL) is an alliance of patient advocacy organizations seeking to improve access to care and treatment globally for people with cutaneous lymphoma.
Rare Diseases International (RDI) is the global alliance of people living with a rare disease of all nationalities across all rare diseases. RDI’s mission is to be a strong common voice on behalf of rare disease patients around the world, to advocate for rare diseases as an international public health priority and to represent its members and enhance their capacities.
The International Alliance of Dermatology Patient Organizations (also known as GlobalSkin) – is a unique global alliance serving patient organizations to improve the lives of dermatology patients worldwide.
The World Skin Health Coalition is a patient-led, multi-stakeholder group of like-minded organizations united under a shared vision: to improve health outcomes for everyone who is affected by dermatological diseases/conditions globally.
The EORTC-Cutaneous Lymphoma Tumours Group brings together the world's experts in this field to discuss the most up-to-date cutaneous lymphoma fundamental science, establish the highest priorities for research and development, address current challenges in patient care and improve clinical practice.
The Lymphoma Research Foundation is the nation’s largest non-profit organization devoted exclusively to funding innovative lymphoma research and providing people with lymphoma and healthcare professionals with up-to-date information about this type of cancer.
The American Academy of Dermatology: Promoting leadership in dermatology and excellence in patient care through education, research and advocacy. For more information on the American Academy of Dermatology, visit their website or call 866.503.SKIN (7546).
CancerCare helps individuals and families better cope with and manage the emotional and practical challenges arising from cancer. Our services–for patients, survivors, loved ones, caregivers, and the bereaved–include counseling and support groups, educational publications and workshops, and financial assistance. All of our services are provided by professional oncology social workers and are offered completely free of charge. To speak directly with a CancerCare social worker, call 1.800.813.HOPE (4673).
The Coalition of Skin Diseases advocates on behalf of individuals with skin disease. The CSD supports basic scientific and clinical research, fosters physician and patient education, generates awareness of skin diseases, and unifies member organizations through the sharing of mutual concerns.
Triage Cancer® is a national, nonprofit organization that provides free education on legal and practical issues that may impact individuals diagnosed with cancer and their caregivers, through events, materials, and resources. The Legal & Financial Navigation Program offers one-on-one help with issues such as work, health and disability insurance, finances, and estate planning. CancerFinances.org is an online toolkit to help people manage finances after a cancer diagnosis.
The Lymphoma Coalition is a global network of worldwide not for profit lymphoma patient organizations with a vision to free the world of lymphomas. The coalition is made up of 56 member organizations from 40 countries.
The Lymphoma Coalitions's mission is: to raise awareness of lymphomas; to improve the understanding of lymphomas; to ensure best practice management of lymphomas; and to encourage the creation of new lymphoma patient groups in countries where one does not presently exist.
Lymphoma Canada is a charitable not-for-profit organization that provides information on new treatments and research as well as support for patient education workshops and seminars to help people understand and manage their cancer. The Foundation supports lymphoma-specific research through the creation of fellowships as well as providing community-based resources to help people learn about and cope with their cancer. For more information on the Lymphoma Foundation Canada, visit their website or phone 866.659.5556.
National Institute of Arthritis and Musculoskeletal and Skin Diseases
The National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) is one of 27 Institutes and Centers at the National Institutes of Health (NIH), the nation’s premier biomedical research agency. Established in 1986, the NIAMS supports research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases; the training of basic and clinical scientists to carry out this research; and the dissemination of information on research progress in these diseases.
