Whether you are living with cutaneous lymphoma, supporting a loved one, or working in the medical or research field, your knowledge, time, and expertise can make a meaningful impact on the Foundation and the community we serve.
Read on to learn how you can use your strengths to support others with cutaneous lymphoma:
Living with cutaneous lymphoma can feel isolating, especially when family, friends, or colleagues may not even be familiar with the disease. By sharing your daily experiences of living with cutaneous lymphoma, you can offer comfort and connection to someone else navigating a similar journey, helping them feel less alone.
Join and participate in online community on Facebook and our networking groups
Meeting others who are affected by cutaneous lymphoma can be an important part of building a support network for your self and others.
Cutaneous Lymphoma Networking Group on Facebook
A private group for people who have cutaneous lymphoma, their family and close friends as a way to share and learn from each other's stories and experiences. The group is monitored by a Cutaneous Lymphoma Foundation staff to help ensure information shared remains accurate.
Online Networking Groups
Held on the Zoom platform, the Online Networking Groups are open to all patients, and family and friends of patients regardless of location. Meetings are offered on the first Tuesday (7:00 - 9:00 pm ET) and second Thursday (12:00 pm - 2:00 pm ET) of each month.
Meeting dates and registration links are available on our Upcoming Events page.
Share your story at a program or in the Forum newsletter
Sharing your personal journey—from your diagnosis to living with the effects of the disease and its treatments—can be an incredibly impactful experience. It not only fosters understanding and empathy but can also be deeply meaningful for both you and those who hear your story.
Learn more about sharing your story
If you are interested in sharing your story at an upcoming live event, please contact us at info@clfoundation.org to find out how.
Watch this space for opportunities to join a committee, council or board
- Board of Directors
- Finance Committee
- Development Committee
- Patient Advisory Committee
- Medical Advisory Council