Get Involved By Sharing Your Experience, Time and Knowledge

Whether you are living with cutaneous lymphoma, supporting a loved one, or working in the medical or research field, your knowledge, time, and expertise can make a meaningful impact on the Foundation and the community we serve.

Read on to learn how you can use your strengths to support others with cutaneous lymphoma:

Share Your Cutaneous Lymphoma Experience

Living with cutaneous lymphoma can feel isolating, especially when family, friends, or colleagues may not even be familiar with the disease. By sharing your daily experiences of living with cutaneous lymphoma, you can offer comfort and connection to someone else navigating a similar journey, helping them feel less alone.

Join and participate in online community on Facebook and our networking groups

Meeting others who are affected by cutaneous lymphoma can be an important part of building a support network for your self and others.

Cutaneous Lymphoma Networking Group on Facebook

A private group for people who have cutaneous lymphoma, their family and close friends as a way to share and learn from each other's stories and experiences. The group is monitored by a Cutaneous Lymphoma Foundation staff to help ensure information shared remains accurate.

Join the group here

Online Networking Groups

Held on the Zoom platform, the Online Networking Groups are open to all patients, and family and friends of patients regardless of location. Meetings are offered on the first Tuesday (7:00 - 9:00 pm ET) and second Thursday (12:00 pm - 2:00 pm ET) of each month.

Meeting dates and registration links are available on our Upcoming Events page.

The community where you are needed

"Where I ended up finding the community that I didn't know I needed was through the Foundation. Through monthly networking sessions, I was able to talk to other individuals dealing with issues pertaining to cutaneous lymphoma. People in different states, the newbies, the ones who have been dealing with it for decades, those experiencing remissions, flareups, escalations and plateaus. I was just able to be exposed to such a wide variety of experiences and validations in what I was experiencing."

Michele - Patient Conference 2024

Share your story at a program or in the Forum newsletter

Sharing your personal journey—from your diagnosis to living with the effects of the disease and its treatments—can be an incredibly impactful experience. It not only fosters understanding and empathy but can also be deeply meaningful for both you and those who hear your story.

Learn more about sharing your story

If you are interested in sharing your story at an upcoming live event, please contact us at info@clfoundation.org to find out how.

Share your time and expertise

Watch this space for opportunities to join a committee, council or board

Board of Directors
Finance Committee
Development Committee
Patient Advisory Committee
Medical Advisory Council