General

Cancer reaches people all over the world, regardless of who we are, what we believe and how much we have. Because of this, there are numerous organizations that provide services and assistance for all forms of cancer. Several such organizations are listed in this section.

Lotsa Helping Hands

Lotsa Helping Hands is a simple immediate way for friends, family, colleagues and neighbors to assist loved ones in need. Users can create a free, private web page and then invite family and friends to view a private group calendar specifically designed for organizing helpers. The aim is to facilitate everyone pitching in with the tasks necessary for life to run smoothly during a crisis such as delivery of meals, rides, babysitting and many others.

National Coalition for Cancer Survivorship

The National Coalition for Cancer Survivorship (NCCS) is the oldest survivor-led cancer advocacy organization in the U.S. and a highly respected authentic voice at the federal level, advocating for quality cancer care for all Americans and empowering cancer survivors. NCCS has also developed several programs with the goal of informing and empowering all those dealing with a cancer diagnosis through credible and accurate patient information. For more information, visit their website or call 877.622.7937.

National LGBT Cancer Network

The National LGBT Cancer Network works to improve the lives of LGBT cancer survivors and those at risk by educating LGBT people and health providers about the cancer risks and survivor experiences of gay men, lesbians, bisexuals and transgender people; increasing awareness of LGBT cancer risks and survivor experiences; advocating for high quality research on LGBT cancer risks, treatment and survivorship; giving voice to LGBT cancer survivors; and offering consultation to healthcare providers.

National Organization for Rare Disorders

The National Organization for Rare Disorders (NORD), a nonprofit organization, is a unique federation of voluntary health organizations dedicated to helping people with rare “orphan” diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

NORD also has a co-payment assistance program for people with peripheral T-cell lymphoma. For more information, call 202.588.5700 or visit their website.

United Way of America

The United Way of America offers local toll-free information lines linking people to community resources and services such as emergency housing and food assistance. For more information and contact information on your local office, visit their website.

Online Support Groups

Online support communities such as listservs can directly link people living with cutaneous lymphoma to one another via email. The Cutaneous Lymphoma Foundation is pleased to promote the following listservs.

National Children’s Cancer Society

For survivors of childhood cancers, the National Children’s Cancer Society (NCCS) has created a program called Beyond The Cure. The mission of Beyond The Cure is to help childhood cancer survivors integrate the cancer experience into their new life as survivors and successfully handle the challenges that are ahead of them and to celebrate survivorship. For more information, visit their website or call 800.5.FAMILY (32-6459).

Cancer Support Community

The Cancer Support Community (CSC) is an international nonprofit dedicated to providing support, education and hope to people affected by cancer. Likely the largest employer of psychosocial oncology mental health professionals in the United States, CSC offers a menu of personalized services and education for all people affected by cancer. Its global network brings the highest quality cancer support to the millions of people touched by cancer. These support services are available through a network of professionally-led community-based centers, hospitals, community oncology practices and online, so that no one has to face cancer alone. For more information, visit their website or contact 888.793.9355.