My personal journey with cutaneous lymphoma: Neil Dicker
Neil Dicker retired dentist who is an avid cyclist discusses his leading-edge treatments and life in remission. He was diagnosed in 2005 with Stage 3 of Sezary syndrome, a form of cutaneous T-cell lymphoma (CTCL). Read Neil's story and watch his video.
CTCL stands for cutaneous T-cell lymphoma, a rare cancer of T-lymphocytes (a type of white blood cells) that involves the skin. There are several types of CTCL, but mycosis fungoides and Sézary syndrome are the most common. We've provided an overview of the disease, treatment and prognosis.
Clinical trials are research studies that investigate new or experimental treatments in patients living with a specific disease. Clinical trials empower patients to play an active role in their own care, contribute to the understanding around a disease, and open them up to access new treatments before they are widely available.
Online support communities such as listservs can directly link people living with cutaneous lymphoma to one another via email. The Cutaneous Lymphoma Foundation is pleased to promote the following listservs.
Cancer Hope Network is a nonprofit organization that provides confidential one-on-one support to cancer patients and their families. They provide that support by matching cancer patients and/or family members with trained volunteers who have themselves undergone and recovered from a similar cancer experience. For more information, call 877.HOPENET (552.4366) or visit www.cancerhopenetwork.org.