Advocacy is the act of educating, supporting and recommending an action.
At the Cutaneous Lymphoma Foundation, we advocate on behalf of people affected by cutaneous lymphomas to affect positive change on many important fronts that include increasing federal funding of research, increasing federal funding for awareness and education, and ensuring access to high quality health care for patients coping with a diagnosis of cutaneous lymphoma.
Patient Resources
Your Voice Matters: How (and Why) to Take Action on Public Policy
September 2021 -Â Stephanie Fischer presents on how public policy can help address some of the challenges faced by patients and their families as well as with the development and accessibility of new treatments. She provides an overview of important policies and the need for the patient advocates to help ensure gains are made and not lost. Ms. Fischer also provides helpful steps for becoming an effective patient advocate.
Stephanie Fischer
Director
MPN Research Foundation
Pennsylvania Rare Disease Advisory Council
Advocacy comes in many forms. It can be as seemingly simple as someone speaking up in their doctor’s office to better understand their diagnosis or recommended treatment. It can be as straightforward as a constituent writing an email to their elected official asking for improved access to care.
At the Cutaneous Lymphoma Foundation, we advocate on behalf of people affected by cutaneous lymphomas to affect positive change on many important fronts. And empower our community members to advocate for themselves.
